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Lipedema is a chronic disorder characterized by an abnormal accumulation of fat cells primarily in the legs and sometimes arms, resulting in a disproportionate appearance. It almost exclusively affects people assigned female at birth.

The exact cause is unknown, but it is believed to be related to hormonal changes and genetics. Potential triggers include puberty, pregnancy, and menopause.

There is no single test to diagnose lipedema. Diagnosis is typically based on the characteristic appearance and pattern of fat distribution, physical exam including palpation of nodules, along with ruling out other conditions like lymphedema or obesity.

Based on current research, we estimate that 11%-16% of adults assigned female at birth have lipedema, meaning it’s between 12 million and 17 million people. We know lipedema can start even before puberty now, but do not have research-based estimates for how many adolescents are affected at this time.

Common symptoms include a bilateral and symmetrical accumulation of fat in the legs and sometimes arms, with the feet often spared. The fatty areas are tender and bruise easily. Pain, heaviness, and easy bruising in the affected areas are also common. There are more symptoms like fatigue that you can learn about in other pages on our site.

There is no cure, but treatments aim to manage symptoms and prevent progression. These may include compression garments, lymphatic massage, exercise, and in some cases, liposuction surgery.