Here are a few advocacy efforts members of the ALA are working on:
🟦 Ongoing and Completed Advocacy Efforts for Lipedema
🏥Online Advocacy
Seen and Heard Web Show
Board member Jenny Beaujean was a guest on the Seen + Heard web show, discussing Lipedema and Lymphedema.
Status: Available online now!
📘 Medical Provider Education
Patients and advocates are encouraged to share the Lipedema Foundation Physician Brochure with their healthcare providers to promote earlier diagnosis and appropriate care.
Status: Ongoing.
🧪 Drug Research Advocacy
ALA submitted requests to pharmaceutical companies encouraging research and clinical trials involving GLP-1 medications for lipedema.
Status: Completed. Advocacy outcomes transitioned to the Lipedema Foundation for continued efforts.
🏥 Medical School Curriculum Campaign
An email campaign was launched targeting all 182 accredited medical schools in the U.S., urging the inclusion of lipedema in core medical education.
Status: Round 1 completed. Future outreach planned quarterly.