Our Vision, Mission and Values

Vision, Mission, Values

Empowering Lipedema Patients in the United States

The American Lipedema Association envisions a world where lipedema is widely recognized and understood, where patients have access to comprehensive care and support and are represented by a unified voice, advocating for their rights and needs, and ensuring they receive the compassionate, specialized care they deserve.

We envision a strong, inclusive community that empowers individuals affected by lipedema, and leverages existing research and educational efforts to promote early diagnosis, effective treatment, and improved quality of life.

We envision ourselves as part of a network of collaborative lipedema communities across the globe, fostering an international exchange of knowledge, resources, and best practices to collectively advance understanding and care for this condition worldwide.

By raising awareness, advancing knowledge, and championing access to quality healthcare services, we will create a transformative impact, paving the way for a society that embraces and supports those living with lipedema, both in the United States and beyond.

Our Mission

The American Lipedema Association is dedicated to advocating for and empowering individuals in the United States affected by lipedema. Our core objectives are:

Support and Connection
We strive to build a strong community that provides support to lipedema patients by connecting them together and to research-backed resources. Our goal is to foster an environment of understanding, solidarity, and access to credible information by linking those impacted by this condition with authoritative sources
and the latest scientific findings. By bridging the gap between patients and validated research, we empower individuals to make informed decisions about their care and stay updated on developments in the field of lipedema.


Awareness and Education
We are committed to raising awareness about lipedema on both national and international scales. Through collaborative educational initiatives, we aim to increase public understanding of this chronic and progressive condition, dispelling misconceptions and promoting early diagnosis and intervention.


Access to Quality Care
Our mission is to ensure that lipedema patients have access to high-quality, specialized care. We advocate for improved healthcare services, treatment options, and insurance coverage, empowering individuals to receive the comprehensive support they need to manage their condition effectively.

Our Core Values

Compassion: We approach lipedema patients with empathy, understanding, and a commitment to improving their quality of life. Their well-being is at the heart of our efforts.

Advocacy: We are dedicated advocates, championing the rights and needs of the lipedema community. Our unwavering voice amplifies their concerns and promotes access to comprehensive care.

Empowerment: We strive to empower individuals affected by lipedema through education, support, and connection to authoritative resources. Informed patients can make the best decisions for their care.

Inclusivity: Our community welcomes and embraces all those impacted by lipedema, fostering an environment of solidarity, support, and mutual understanding.

Collaboration: We believe in the power of collaboration, working alongside global partners, researchers, and healthcare providers to collectively advance lipedema knowledge and care standards.

Scientific Integrity: Our efforts are grounded in scientific evidence and validated research. We prioritize disseminating accurate, up-to-date information to guide patients and shape effective treatment approaches.

Our Bylaws

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