Amplifying our Voices by Uniting
Our memberships are designed to include everyone affected by lipedema, so we can speak with the power of millions of voices.
Benefits Include
Networking events and online webinars.
Early access to our quarterly newsletter, directly sent to you, before they are released to the public.
Invitation to the bi-annual members-only conferences to be held within six months after the Lipedema World Alliance meetings.
Make Your Voice Heard
Opportunities to participate in special interest groups, committees and task forces, allowing members to shape the direction and initiatives of the American Lipedema Association.
Opportunities to be included in content creation, by sharing your stories and images in the American Lipedema Association’s published materials.
Membership Benefits
- Exclusive events
- Shaping ALA initiatives
- Early access to newsletters
- Direct input opportunities
- Content creation involvement
- Members-only events
membership
An Estimated 12 to 17 million people have Lipedema in the US. Imagine what we can do when we join forces for change.
Lipedema Patient and Caregiver Membership
As a member, you unite your voice with other Lipedema patients and caregivers to amplify our collective power in advocating for the lipedema community.
$15
per year
✓
Early access to quarterly newsletters to stay up to date with lipedema news and actions
✓
Share your story in publications
✓
Amplify your voice
✓
Exclusive invitation to members-only events
Organizational Membership
Benefit from membership through increased collective advocacy, shared knowledge, and expanded resources. By uniting patients and caregivers, these groups amplify their voices to raise awareness, represent shared experiences, and influence healthcare policies.
$50
per year
✓
Early access to quarterly newsletters to stay up to date with lipedema news and actions, as well as patient concerns and stories
✓
Be invited to share your story in publications
✓
Share your perspectives from the medical community
✓
Exclusive invitation to members-only events
Honorary Members
Individual patients, caregivers, and medical professionals who have made significant contributions to the Association or to the understanding and treatment of lipedema, as determined by the Board of Directors.
Frequently Asked Questions
What is Lipedema?
Lipedema is a chronic, progressive disorder characterized by an abnormal accumulation of fat cells primarily in the legs, arms, thighs, buttocks and abdomen. It results in a disproportionate appearance and is painful. Lipedema almost exclusively affects women.
How is Lipedema diagnosed?
There is no single test to diagnose lipedema, yet. Diagnosis is typically based on the characteristic appearance and pattern of fat distribution, physical exam including palpation of nodules, along with ruling out other conditions like lymphedema or obesity.
What are common symptoms of Lipedema?
Common symptoms include a bilateral and symmetrical accumulation of fat in the legs and sometimes arms, with the feet often spared. The fatty areas are tender and bruise easily. Pain, heaviness, and easy bruising in the affected areas are also common. There are more symptoms like fatigue that you can learn about in other pages on our site.
Do you have any lingering inquiries?
Experiencing difficulty locating the desired information? Reach out for a discussion.